FRIENDS FOR TERRY

How could you resist being a member of "TEAM FRIKKEN"?!

2010-06-15T19:52:00.005-04:00

Remember Jeffery - "I'm Fo' Yea's Ol'!" - from Bill Cosby's live show, "Himself"?**

Just like Jeffery, Terry Frikken, Sr. (my Dad!) just celebrated his four-year anniversary - four years after his liver transplant!

Want to celebrate with us?

Walk with TEAM FRIKKEN in the Liver Life Walk SE Michigan 2010.
This walk benefits the American Liver Foundation.

Click here for more details and to register to walk.
July 24, 2010
Heritage Park, Farmington Road, Farmington Hills, Michigan
9am registration
10am walk

It's about 1 1/2 miles.

Can't walk this time? Donate!

Click here for more information to do either.

My sister, Kate Frikken, Terry's daughter, has been asked to be a keynote speaker at the walk!

What will she talk about?

We love this guy.

TERRY! (a.k.a. Brother, Dad, Son, Grampa/Peepa, Honey, Hey You!)

Have any good anecdotes, stories, pictures to share with her?

Send a message back to us through this blog. Let's toast (and maybe roast!) Terry Frikken, Sr.

**If not, take a peek:

Thank you!
Susan Frikken

Just in case you were wondering about Terry...

2009-10-22T10:46:00.001-04:00

Pop on his new bike!
Originally uploaded by sfrikken

...here he is!

Passed 60 (years!) and is going strong!

Kate - his daughter - recently raised money again in the Liver Walk for the American Liver Foundation - in honor of him. She recruited friends and family for TEAM FRIKKEN, again this year!

Give him a call! But if he picks up while he's driving, tell him you'll call him back later. Have you ever seen him drive?!?

Dad's Birthday Present

2009-07-20T09:13:00.002-04:00

Dad's Birthday Present
Originally uploaded by sfrikken

10 October 1949

Guess who will be 60 this year?

Well, yes, Tom Watson!

And . . . Terry/Dad/Papa/Grampa!

Remember that photo of him riding his bicycle in Madison?

Well, now you can ask him if he's been riding his very own bicycle (that still needs to be delivered)!

It's even got a storage rack on the back, so you can check in with him to see if he's been hauling his groceries or booty from Home Depot home on it...

Happy Terry with some of the family

2009-06-18T16:30:00.001-04:00

Originally uploaded by sfrikken

Terry with daughter Susan, wife Lora at the capitol square in Madison, WI at the farmers' market.

Does he LOOK like he's doing well?

2009-06-18T09:47:00.001-04:00

Originally uploaded by sfrikken

Here's Terry, on a recent visit to his daughter Susan and her partner Deb's home in Madison, WI.

All the activity in town inspired him to want to hop on a bicycle.

So they did, and here he is biking down the Capital City Trail, along Lake Monona.

In celebration of the third anniversary of his liver transplant (14 June) . . .

GO POP!

Susan and father Terry

2008-07-20T21:40:00.001-04:00

Susan and father Terry
Originally uploaded by - Deb -

At Terry's son's (and Susan's brother's!) wedding.

Click this photo to see more pictures of the happy event!

It's the Healthy Liver Anniversary!

2008-06-10T09:40:00.005-04:00

Dad and grandson Braden

This Saturday (June 14) will be two years that Terry (a.k.a. "Dad") will have been living with his donated liver.

Regular lab work keeps tabs on his health. Aside from some high kidney protein readings that are stable, things are going really well.

He's been "golfink" (otherwise known as golfing) when the weather permits, and is getting ready for his son, Terry's bachelor party this Saturday.

Thanks for celebrating with us!

Are you a registered organ donor? Dad received his gift of a liver because someone else had registered as an organ donor.

Find out how to register here:

(Click the graphic above!)

Just wanted you to know Terry is doing well!!

2008-01-03T16:54:00.000-05:00

Here is proof!

(And don't forget to ask him about the wedge he's got in his sights for this year's golf season!)

Photos by Kate Frikken

Papa and Colin

2007-12-07T19:05:00.001-05:00

papa and Colin
Originally uploaded by sfrikken

Click on the photo for some more photos!

Photos and an Update

2007-10-29T22:49:00.000-04:00

Well, it's been a while since our last update, but here is a brief one.

Terry/Dad has been experiencing some confusing kidney test results that his doctor ordered several months ago. The reading is for urine light chains. They are not sure what it all means, yet, but there are tests ongoing.

Meanwhile, he continues to get liver check-ups and medication check-ups.

Recently, dad also had an odd occurrence; retinal detachment! He had a bit of a laser surgery to repair, and things are going well, but there may be more adjustments that need to be done.

OK. Now the goodies.

Guess whose birthday it is today...

2007-10-10T16:59:00.000-04:00

Yep!

Today, the 10th of October, is Terry Frikken Sr.'s birthday!

Wish him well, and celebrate with the rest of us!

Team Frikken Liver Walk: Over $700 for ALF

2007-09-10T16:28:00.003-04:00

Thanks to the organizing skeels of Kate Frikken (Terry's daughter) and the kindness of family and friends, Team Frikken raised:

$700+ for the American Liver Foundation, in honor of that guy we love so dearly--Terry "Dad" "Papa" "Grampa" "Pop" "Grouchy" (hey, how'd that get in there!),"Mister" Frikken!

Thank you, thank you to all who donated and walked.

Additional Team Frikken Players

2007-08-10T09:40:00.000-04:00

Please see this previous post, to which these photos belong (my apologies. it was late when i posted those)!

Other players on Team Frikken:

Braden Angel (with granny Lora)

Don and Toni DeVolder

Team Frikken Liver Walk: Please Join or Donate!

2007-08-09T21:45:00.000-04:00

WHAT and HOW: American Liver Foundation's 2007 Liver Walk and 5K Fun Run. Join the Team Frikken for the walk and help raise funds.
--Can't make it? Please, go to TEAM FRIKKEN'S SITE AND DONATE!

WHO? Team Frikken!!! Organized by Kate, Terry's daughter. Join us! (See pictures of some of Team Frikken below!)
WHEN and WHERE: September 8th at 9am at Stoney Creek ( in Shelby Township, MI)
WHY? As you know, Terry, my father, was diagnosed with Liver cancer and had 3 subsequent surgeries to remove the recurring tumors. Just over a year ago, he received a life-giving transplant of a liver. Walk or donate to honor him; walk or donate to honor his donor; honor his physicians and health care givers. Walk to join us, his family as we continue this journey together.

OK-and, how cool would it be to be a part of "THE FRIKKEN TEAM"!?

From the ALF's site:
"Why Walk?
• Liver disease afflicts one in every 10 Americans.
• The economic impact of liver disease in lost wages, absenteeism etc. is estimated to approach $30 billion annually.
• Liver cancer is the only cancer whose incidence is increasing.
• More than 2,500 children are diagnosed with liver disease each year.
• Approximately four million Americans are afflicted with hepatitis C – an estimated 70% are unaware that they carry the virus.
• Within the next 20 years, the hepatitis C epidemic is expected to cause more deaths annually than AIDS.

TEAM FRIKKEN:

Terry and Lora Frikken.

Tiffany and Terry Frikken, Jr.

Colin and Kate Frikken.

Deb Hanrahan and Susan Frikken.

Toni DeVolder.

Lois Frikken (and sister Eveyln Wood).
Tim and Ruth Frikken.

Here comes the Bride's Brother (and rest of the family)...

2007-06-24T11:23:00.000-04:00

Pictures from the wedding of Dad (Terry)'s sister T0ni (a.k.a. "Tuna"). More photos here.

Dad and Uncle Tim (brother) walked Tuna down the aisle.

Cute daddy in his "monkey suit".

Granny (the mommy), Tuna, Don, Uncle Tim, Aunt Ruth, Dad and Mom (Lora).

Dadications

2007-06-17T11:15:00.000-04:00

So many things to say about this past year reguarding my Brother Terry,
an the ordeal he and all of us went thru. First of all, Me, my Mom, and
Brother Tim can never express enough the love that we have for Terry -
and so very, very grateful to all our family and friends for all the
support and prayers that came his way during this time. In the past,
with our sadness of already losing Dad, Ted, and Tom , then now  to see
Terry struggle with this illness, was  at times a little more than we
could bear. We especially watched over Mom, who is just the most amazing
person with all this that has been handed in her direction, seems to at
times run circles around us all!!

She kept Terry going with his walks, which they both love to do, and spent
alot of quality time together.
The love and support of Lora, Susan, Kate, Terry Jr , and Deb, was also a
constant for him. I also truly believe that if it wasnt for his Grandsons
Colin and Braden, he would not have recovered so easily. Those two little
guys are just the lights in Grandpa Terrys life !!

I know he is feeling better, when he calls me in and complains about the
"monkey suit" he has to wear at my wedding next week.  I wouldnt trade
those bitchin' phone calls for anything. I just say "too bad" and hang up on him!!
Our wedding day will be alot more than a celebration of Don and
I , but also a HUGE celebration of the wonderful  gift that we have
our Brother here with us and doing well !!

Toni Frikken

I have only come to known Terry Sr.during his journey of recovery, which doesn't allow for many funny stories or anecdotes (yet) worthy of posting or blogging (although I am convinced that the "gentleman" in him was all that stood between me & a few choice words - in that I was rather late arriving when we first met). It is the positive impact he makes that motivates my more personal, heartfelt reflection from me to you.

As I have discovered the wonderful family surrounding Terry, it is no surprise that at the core is this thoughtful, resilient and expressive man. I was drawn to write when Terry's transplant anniversary was linked to a celebration of Father's Day. The connection is more than dates. There is such a strong passion as Terry talks about his family. It hits you as he is talking about his adult children and (what they may consider) their everyday work and accomplishments, or their goals, or his hopes for them. That spark is there time and again as he talks about more family and especially his grandsons. Unlike many, Terry doesn't need to be loud, showy, or offer lengthy explanations to reveal the power of his feelings. He does it simply, directly and yet very passionately.

I often wonder how anyone summons the strength to survive and fight something like cancer. Then I have the privilege to be shown by someone like your and your family. How appropriate that his transplant anniversary is alongside a date that celebrates the love of and for a father.
(Pam Micallef)

Terry,
It is amazing! I remember all I did on that day is pray and pray; for you and Susan and Laura and your whole family. God heard my prayers and the ones from friends and others that heard about it and wished everything would be all right for you!

You made it!
(Eva Cardenas)

I really did stop to think about this anniversary, this birthday, of Dad's life with his new and cancer-free liver.

I don't know what i would do without my father in my life. I cannot stand the thought of the world without him in it.

He picked me to be in his life; what more a child ask for in a Dad?

He'll always be my Pop, my Dad, my Daddy. How fortunate that I was cared for and guided by him, learned from him and can now be an adult with him.

Thank you, Dad, for the tools (literally--he gives me tools for gifts!--and in all the other ways you can get what you need) you have given me to live my life.

Love

Susan

New Drug Extends Lives of Liver Cancer Patients (NY Times)

2007-06-05T09:47:00.000-04:00

Study: Liver Cancer Breakthrough Found

By THE ASSOCIATED PRESS

Published: June 4, 2007

Though this is not really applicable to Dad's current situation, I thought it would be of interest.

It's almost a year-reflect with us. Please reply and post.

2007-05-28T13:35:00.000-04:00

It will be one year that Dad has had his liver on 13 June. He's looking fine, ain't he?!

We are hoping to mark this amazing anniversary in some way.

We'd like for you to share your thoughts about Dad, his recent crazy health journey, renewal of life, frustration with life, anything that makes sense to you to share on this anniversary.

Would you please:

1-Post to this blog in response? or
2-Send an email to sfrikken@yahoo.com.
3-Share this with those who are not receiving email who may want to reflect on their own. Contact me at sfrikken@yahoo.com and I can call them or they can mail to me.

I'll compile your reflections and responses and we'll share them with Dad that Father's Day weekend.

Thank you, all.
Susan and family of Terry Frikken, Sr.

Grandpa, Colin and Thomas the Train

2007-04-30T22:33:00.000-04:00

Greenfield Village on 4-29-2007:

The future's so bright...

2007-02-20T19:39:00.000-05:00

...Dad might have to wear shades!

Looks like Pop is closing a deal on a job offer with ProSource Wholesale Floor Coverings, at their Metro Detroit location out by Metro Airport (Romulus, MI).

Dad would be the store manager, there. He has been really excited about this opportunity, as it will be working with people he has been working with for years--selling flooring products to contractors, builders, interior decorators, etc. --and that will make the "sell" low-key. He can do what he does best in a lower-stress environment.

And who do you know who knows more about floor products? Who would treat you more fairly or honestly? My Pop and no one else.

Who enjoys being with people of all stripes more than Terry Frikken, carpet guy?

Yes--he has ruined all of us for dealing with contractors, everywhere. Our expectations are much higher than the average service experience.

His clients are lucky.

His new boss is very lucky. Hopefully, he'll be allowed to help this business to grow.

In Michigan's current economy, to be able to find a job that not only will pay the bills, but will actually be something he would like to do is a great bit of luck.

Keep the good vibes coming.

YES. This would be a good time to call him!

Email me if you need his number. sfrikken@yahoo.com

Good News

2007-02-14T09:35:00.000-05:00

Did you know his favorite singer is Johnny Cash?

Looks like the extensive bloodwork done by the lab to check Dad for cancer says there is no indication anywhere of cancer

AND

there is no way to figure out that it originate anywhere BUT his (old, original and out-of-him) liver.

If that is their conclusion, that means this kind of cancer is really rare in the U.S., as they and we thought. So, with this new liver, and with the chemotherapy...it looks really good!

In addition, his medications seem to be balancing the rejection that he was having, so things should even out there, too.

It will be a lifetime of monitoring for the rejection medications, testing for cancer.

The drugs mean he is at higher risk for some things, like increased infections because of a lower immune system, higher risk of damage (including skin cancer) from sun exposure...and he cannot have grapefruit juice.

So: Keep him in the dark and OJ only!

Dad and his peeps

2007-02-12T13:56:00.001-05:00

colindadbraden1
Originally uploaded by sfrikken.

Colin, Dad and Braden

Some Rejection

2007-02-12T13:03:00.001-05:00

Dad is getting his bloodwork done more frequently because he has been experiencing some signs of organ rejection (liver).

Today he is in getting more lab work, because he is getting tingly in his toes, fingers and lips, which he says is a sign of rejection.

Good checkup and cross your fingers!!

2007-02-08T10:59:00.000-05:00

OK:

Dad says that his last body scan showed...TADA! 100% cancer-free-ness!

While he has had some trouble with liver rejection, they've adjusted his meds accordingly, and it appears that he's on his way to feeling better. He'll have more news soon on the last liver tests.

He does say that he's surprised at the fatigue he still has. It's hard for a tough-guy to feel tired (or "Tahrd" in Dad-Speak), but I keep telling him it's no wonder we're all afraid of chemical warfare, because it does BAD THINGS to you (his chemotherapy prophylaxis).

And THAT makes him a little worried that a full-time job will be hard, BUT...

TODAY he has another job interview (he's had a few, with paltry offerings, way below his value) and he's really looking forward to it.

In addition, his son, Terry, (bruddah) has connected Dad with a very cool RECRUITER who is offering her services to him. They met, so now she knows him and will help him get a good job.

So...lots of good openings, so cross your fingers!

Waiting for Guffman...er, Frikken.

2006-12-22T08:32:00.000-05:00

Waiting to hear about an interview Dad is scheduled to have.

Not saying too much about it. Not want to jinx it!!

Some unfortunate news; dad's workplace was unable to have him come back to work: As the economy and the floor covering industry, especially in metro Detroit, is struggling, his job is gone.

So, we are waiting to hear what kind of good new opportunities Dad will have.

I have to say that it was really a gift for Deb and I to be able to edit Dad's resume. Just to see his experience and talents and skills in writing, hard in front of my eyes, was really awesome.

So, a holiday wish: That Dad will have the opportunity to use all the talents and brains and people-person skills that he has and realize it all in a fabulous new job.

2006-11-27T09:15:00.000-05:00

Dad/Terry/coach-mr Frikken (Sr)/Son, brother, hubbie, etc...

...is moving right along.

Dad is having some more tests related to protatitis that he has had in the back (not cancer, but a chronic inflammation that needs to be monitored).

It also sounds like Dad has a new diagnosis: Diaphragmatic Paralysis . We think this is what it is, based on what Dad conveyed from the radiologists/pulmonologists. He went in last week to get his lungs checked, thinking maybe mild pneumonia from all the reduced immune system effect of the chemo, but then they found his diaphragm (not the baby-preventer, but the breathing muscle) on one side (unilateral, as it says in that write up) was expanding when it should contract, and vice versa (or VICEY VERSEY, as Dad would say)!

Ask him about his diaphragm--he's got a million of 'em!! Really.

He is also planning to go back to work soon! Yikes! It's good news and scary all at the same time.

Stay posted. And please keep him in your thoughts and conversations. He is at his best and happiest when sharing coversations and jokes and stories with people.

Happy Holidays.

No cancer

2006-11-12T21:54:00.000-05:00

The MRI shows no cancer anywhere!

Only a short time longer for the chemo!!

MRI on Thursday the 09th of Nov

2006-11-07T09:46:00.000-05:00

Dad has his MRI--scanning his whole body--to see if there is any cancer anywhere.

Please keep him and everyone else in your thoughts, prayers, and elsewhere.

Check in with him, too, at 586-774-2867 .

Be well.

2006-11-05T12:39:00.000-05:00

Our daughter, Susan, has done such a great job of keeping up "Friends For Terry," this blog which tells about her Dad's transplant and subsequent chemotherapy. Many have helped by adding their talents, including Deb, Kate, Terry, Jr., and Aunt Tuna (Terry's sister, Toni... so named by Kate when she was little. Terry, Jr. called her, Nnnnnaa, and still does sometimes!) I am 'like' so far behind placing any info at this site, I should be banned! But this will be a little blog from me.

This site is informative, sad, happy, entertaining, with comments from family and friends. If we had another 10 years, we wouldn't have time to thank everyone for their time, love, donations, and all-around support!

Mostly, we need and want to thank our children, Susan & Deb (yes, this time I didn't forget Deb, who is part of our family by virtue of love and commitment on her part, and because we love her, on our part!); Kate & Colin, (without our grandchildren, Terry may not have been able to keep such a positive attitude and do as well as he has); and Terry, Jr. & Braden (Terry has shown what an incredibly loving Dad he can be. Just as relaxed and knowing as Kate! It amazes me to see them accept responsibility as though they have always known what to do!!). I say this, because I was a VERY uptight mother... I still freak when the babies choke on anything... even water!

I won't go on to mention all the time, fundraising, handling finances and insurance companies, and exceptional love and patience, just to name a few things, that they have all "donated" to us! It is obvious if you read through this site.

Thanks... Love, Lora

Photos!!

2006-11-02T09:31:00.000-05:00

Yay! Here are photos. No, .... HERE.

I included some of the non-bowling ones, too, that Tuna (Aunt Toni) sent.

Toni and her fiance, Don, all geared up for the Tigers' game.
The cute fluffy-eared dog is Buddy, the foster dog at Mom and Dad's.
The rest are Mom, Dad's. Close up of the Shih-Tzu is Katie's dog, Aja, now living at Mom/Dad's.
Some of Colin in his Nemo (MEMO! MEMO!) Halloween outfit.
Some of Terry, Jr. and Braden.
AND...some of the Bowling Fundraiser!! Including my attractive cousins and family members and family friends.

Yay.

Update

2006-10-31T08:18:00.000-05:00

So, Deb and I came into town this past weekend for Colin's birthday (his oldest grandchild). And we got a looksee at Pop firsthand.
[Photos: Dad with Braden, Mom with Colin.]

He is putzing around, doing little jobs. His hair is intact, though temporarily thinner. He looks and feels more tired. We are trying to tell him he's still tough. It's just that it is hard to fight a chemical! That's why chemical warfare is so scary...because you cannot use brute force against it.

His chemo is nearing the end. The end is in sight!! Considering EVERYthing, he's doing remarkably well. Liver readings are great. It is just the chemo side effects (fatigue, headaches, neuropathy--a tingling/numbness that is really uncomfortable in the extremities) that are the problem. So...again, all things considered, things are going well.

The other downside is BOREdom! Dad and mom have taken in a few foster dogs for the Michigan Humane Society (an amazing organization, really), and that is helping. Here is a picture of one of the babies they have currently:

This is Buddy. He is a GOOD dog. Really.

He also helped rehab a squirrel that one of mom's coworkers rescued from cold, rainy road after it was hit. It is still alive and now in a rehab center that mom dug up!

Dad is looking forward to going back to work. He'll feel more normal. And stop watching COPS.

I think he should go into a new field. Time to get away from carpet and do more people-only stuff. What do you think? What job would he be best at?

Send your feedback!

Bowling Fundraiser a HUGE success! Did you go?

2006-10-31T08:12:00.000-05:00

From Toni (Dad's sister):

"...the benefit was a HUGE success yesterday. We had over 70 bowlers, and everyone had a great time... I took alot of pictures, so I will get them to you so you can put them on the web-[you heard it here!]... We were over-whelmed at the generousity of our friends.Needless to say, Don and I are exhausted today, but a 'good' exhausted."

They raised over $2,000 with your help!! Thank you so much for attending, and for all the donations that were made to make the event fun and helpful.

I cannot wait to see the pictures...!

Did you attend this event? If so, send your feedback; we'd love to post it to the blof (via the Comments section or email me and I'll post: sfrikken@yahoo.com )

Send him Happy Birthday wishes

2006-10-09T22:28:00.000-04:00

Tomorrow, 10 October, is Dad's birthday.

Give him a call, or stop by!

The gift of community and friendship is probably the best gift he can get.

Thank you for all you do.

More updates to come...stay tuned!

Reminder: Sign up for Bowling Fundraiser!

2006-10-09T22:19:00.000-04:00

Do you have your team yet? Great excuse to get to the resale shop and get vintage bowling shirts and gear!

WHAAA?--Bowling fundraiser: Bowling, 2 games... Prizes and Raffles!!!

WHEN: Sunday, Oct. 29 at Rosebowl Lanes, Martin and Groesbeck.

12:30 register and 1:00 bowling.

CLAMS: $15.00 per person, includes shoes.*

COMMUNITY: After, (optional) Texas hold 'em tourny at McGees Lounge at 8 1/2 mile & Gratiot.

WHEREFORE: To raise money for Dad during his days without employment.

SIGN ME UP! Call Toni at 586-776-5847 to RSVP or if you have questions!

*Prada, extra.

Thanks, to Kate, for "letting" me steal this message almost entirely verbatim.

Bowling for Dollars!!

2006-09-21T22:14:00.000-04:00

It is here!

Go Bowling, win prizes, and raise money for Friends For Terry!!
WHAT: Bowling Tournament (Fun!)
WHEN:
Sunday October 29 at 12:30
WHERE:
Rose Bowl Lanes at Groesbeck and Martin Road, Roseville
HOW TO SIGN UP:
Call Toni Frikken: (586) 776-5847 or Don (586) 899-4446.
If you have questions, call them, too.
QUESTIONS: Can you sign up a team? Do you need your own bowling ball? Do you get to wear cool shoes? Check it out!! Call Toni, or email me your questions at sfrikken@yahoo.com
Please share this with your friends, neighbors and family. The more of you, the more fun, the more funds!

Fundraising update and Dad-honoring joke contest!

2006-09-12T17:57:00.000-04:00

HONOR DAD/TERRY WITH JOKES: While we await final tallies on the fundraisers, here's a task for you!

Send in a joke, either via the "comments" link at the end of this blog post (all are now moderated by me, so no weirdos...that is, outside weirdos!...can get in without my approval), or to my email, directly -- sfrikken@yahoo.com

Make it relatively clean (there are all ages and sensitivities, here, AND try to make it SHORT and SWEET. This is in honor of Dad/Terry. He loves the silly, short and sweet ones. The bigger the groaner, the better!

Here are two examples:

1--What do you call a pirate who didn't go to school? -- Captain Hooky.

2-- Man in his garden comes across a snail and throws it over the wall.
Twenty years later, the man hears a knock at his door. It's the snail. He says to the man:
"Hey! What did you do that for!?"

We'll share them all with him, so that he can continue to entertain the world with a new cache of jokes!

It would be great to hear from you, especially if you haven't replied to any of these posts, yet!

Your deadline is the end of September!

TALLIES:

Yard Sale: Due to really crappy weather, the yard sale brought in $200. Thanks to everyone's donations and super hard work.

Kenny Chesney Show: TBA

eBay auction (3 music CD's): $20 (we'll do better next time)

UPCOMING EVENTS:

Bowling Tournament! Stay tuned...

UNTIL NEXT TIME:

Thanks for the love you send to Dad and everyone else; and thanks for your patience with form-letters (a.k.a-The Blog!)

A little puffy, but doing well, thanks!

2006-09-04T20:58:00.000-04:00

So, Dad is doing pretty well; he continues to walk a lot--walk the dogs, walk with granny, walk at the Michigan Renaissance Faire with Colin (Early birthday presents they got; Mom and Dad's favorite thing to do. See Dad in his authentic Murray plaid kilt from Scotland. Yes, he is Scottish and Dutch.)

From what Dad says, he is losing a little hair and feels puffy (chemo side effects), but is doing well. As you can see!

Chemo is being switched to Tuesdays and Wednesdays. Not clear when it will come to an end.

Did you send in your favorite story or anecdote or photo about Dad/Terry? Please share something! Send your entries to sfrikken@yahoo.com ! Thanks!!

Your stories here! We invite you...

2006-08-27T12:08:00.000-04:00

...to write/share a short thought, memory, story, poem, photo (or even a video if you have it) of Terry Frikken, Dad.

We'd love you to share your thoughts of him, your memories of him. Funny, thoughtful, whatever!

Please go to the weblog for this site--Friends For Terry--click that link. Then, click on the "0 Comments" link below THIS posting on the 'blog.

Share!

Thank you!!

If you do it, i'll do it! I have stories...

Concert & Dad update

2006-08-27T11:55:00.000-04:00

From preliminary reports, the Kenny Chesney concert at Ford Field last night was a hit. There were plenty of helpers...THANK YOU!...to raise funds. We'll let you know, soon, how successful it was.

Congratulations & thanks to Terry who organized all of it.

I hear there may be photos of the event?

I hear that the American Idol -- Carrie Underwood -- was also at the event. Not working the refreshment stands, but singing! Click HERE for more info on how it was expected to be.

Did you go? Got stories? Share them! Click the link below this post on the blog page , where it says "0 comments" (or however many comments there may be), and post a comment!

-----------

Dad golfed Friday night; he said he was tired but felt pretty good. His game wasn't great!

He ALSO worked the Kenny Chesney show! All good news.

Chemo-ing, walking and golfing!

2006-08-24T16:57:00.000-04:00

Dad had his second major round of chemo this week. Monday and Tuesday. He is in good spirits, and doing pretty well.

Though his hair is thinning a bit, he says he feels good.

He and granny walked at least 3 miles today, at Metro Park, again!

The doctor said he could play golf this Friday (!) if he feels OK from the chemo!

Have you talked to him, lately?

Stay tuned for more fundraising action. Let us know what you find at the Yard Sale and how the Kenny Chesney show was!

Now, for Dad...

2006-08-17T17:14:00.000-04:00

Dad has his second week of chemotherapy this week. On Monday he'll be at the hospital all day, getting chemo, having one of his two usual blood draws, and also following up with the hepatologist.

He's having some side-effects, including puffiness, but he says his doesn't appear to be as bad as some people he sees. Also, neuropathy in his right leg, which drives him crazy He said it is like having a funny-bone sensation, at about half strength, all the time.

Meanwhile, he is still taking long walks (walking with "our little granny", his mommy), putzing around the house, and watching "Cops" but not really because he'll get into trouble.

In addition, Dad is giving Susan, his daughter, advice on how to get her old dog to eat, flooring tips, and other general advice.

Here's a joke, in the vein of Dad-Terry:

Q: How much does a pirate cost?

A: A buck-a-roo!

Take care. Hope to see you at a fundraiser!

Help us raise money! Three ways! READ THIS ONE.

2006-08-17T16:36:00.000-04:00

FUNDRAISERS! If you would like to help us raise money for Friends for Terry, please read on!

1--BIG FUNDRAISER NUMBER ONE! AVON CALLING!
Jody Scruggs, Avon Lady to the Frikkens, has offered her fundraising abilities with Avon to help us raise some money for Dad. If you are looking for gifts for someone, including yourself, contact us, soon. Products include: Moisture Therapy, "Naturals" line products (body lotion, shower gels and antibacterial liquid soap), Avon Basics Hand Creams, and Skin So Soft bug guard/sunscreen. Prices are great (between $5 and $10 for mix and match groups of products.) and the percentage of return is really good! Buy stuff to raise money!

Contact Susan at sfrikken@yahoo.com or 608-240-9327, OR contact Kate at 586-344-7296 or kate_frikken@hotmail.com . You have until the end of August!!

2--BIG FUNDRAISER NUMBER TWO! Volunteering at the beer counter at the Kenny Chesney show, Sat 26 Aug at 4:30p (concert time), Ford Field. (Click here for a map.)

Interested? Contact Terry (our brothah, the son) at: 734-717-9750 to register. It's fun!

We need at least twenty people! And the more people, the better, because:
a--So that people can take breaks.
b--So more stands can be worked, meaning more money raised!

Terry (our bruddah) will have the information about what time to show up and where, and where to take a quick online quiz (required) showing you know how to ethically distribute beers! :)
If you OR anyone you know (if you don't know us, you will!) would like to do this (Terry is the social director; he'll make you feel right at ease!), please call him right away. Even if you just want to find out more, please call. These are very, very lucrative fundraisers. We can really use your help.

3--BIG FUNDRAISER NUMBER THREE! YARD SALE!
When: Saturday, September 9th and Sunday, September 10th. 10-4:30, both days.
Where: 23695 Blackett, Warren, MI. (Click here for a map.)
What:
a-Shop. Lots of awesome wares. Furniture, clothing and more.
b-Still time to donate items to sell. For more information, contact Toni (Dad's sister) at 586-776-5847 or tfrikken@cfcumail.org

4--AND--Yay! Three CD's sold on eBay! We made a few dollars for Dad! I am hoping to get more items to sell, soon.

More info to come on our actual FATHER...

Thank you for your help!!

Let Me See If I Can Remember Everything...

2006-08-07T12:17:00.000-04:00

Okay...today was Terry's first Chemotherapy "treatment." He will have this done on Mondays and Tuesdays at Henry Ford Hospital, but only have a "treatment" every other week. We believe that he will have at least 6 treatments, which will mean about a 3-month time span. However, this will depend upon how he tolerates his chemotherapy. If he becomes ill, they may hold off on a treatment, or change medications, some people even land in the hospital if they become too ill, which would prolong the treatments. So, for now, we are speculationg on the best-case scenario.

On the off weeks, Terry will still have blood drawn and also see his oncologist to determine whether any changes in dosage need to be made and to monitor his overall health. Bloodwork is shared between the transplant doctors and the oncologist, obviously due to how cautious they all must be after a transplant.

Monday's medication is "Eloxatin" (Oxaliplatin injection). Once they start the IV, it takes about 90 minutes to complete the treatment. On Tuesdays, the second drug is administered. This drug is "Gemzar" (gemcitabine HCI). He will be receiving what are considered middle-of-the-road doses, so as not to cause too much trauma to his newly transplanted liver.

Common side effects of Eloxatin combination therapy are: Nausea, Vomiting, Fatigue/Tiredness, Diarrhea, Low White Cell count (neutropenia, which can lead to increased chance of infection), Low Red Blood Cell count (anemia, which can lead to fatigue), Neuropathy (tingling or numbness in fingers and toes). Because of the possibility of Neuropathy, Terry has to protect himself from the cold! He has to AVOID cold foods such as ice cream, cold drinks, or even adding ice cubes to any drink. This is kind of funny, in a weird way, as he is now trying to "detox" from ice cream because he was eating it EVERY evening, causing him to put on some pounds! Of course, avoiding cold weather, keeping hands out of/away from freezers/air conditioners (just in case he begins to lose feeling and can't tell how cold it is), as well as keeping socks on, plus the usual commom sense protections, all apply.

With Gemzar, the side effects include, in order of importance: Low White Cells, Low Platelets, Low Red Blood Cells, Mouth Sores or Sore Throat, Skin Irritation if the drug leaks out of the vein, Nausea and Vomiting, Allergic Reactions, which usually occur within the first 15 minutes or so of administering the drug...so we shall see tomorrow...though this was lowest on the list of side effects.

In the long run, there is much to be aware of, both positive...and negative. Dehydration, making sure to eat good foods with added iron, taking in lots of fluids (which he is supposed to be doing now anyway, while avoiding caffeine as much as possible!), not eating raw fruits and vegetables to avoid bacteria.

It is even more important than ever that Terry avoid groups of people/children due to risk of colds, flu, and all things bacterial that may cause infection. After all, his immune system is at risk from the transplant and ongoing anti-rejection medications, let alone adding chemotherapy! If you see him without a mask...feel free to lecture him. At lecture times, he prefers to suddenly do what he should, rather than listen, for the ten millionth time, to what he knows he should be doing! However, he still prefers to try to sneak around without the mask! *sigh*

Fever or diarrhea are especially something to look out for (causing dehydration), in addition to mouth sores. He may have sudden changes with memory (problems concentrating, remembering). All of this is temporary, and some sypmtoms may not even occur. Of course, we can still tease him about just being OLD, as opposed to the medication causing memory loss! (I, especially, can do this, because I am older than Terry!) As far as the nausea goes, he was told to expect some. Even with the medium range dosage, he was given two types of anti-nausea medications. One to try first, Prochlorper (Compazine Generic), on the mild side, and if that doesn't work, he takes the other, Zofran, a stronger anti-nausea drug.

One update on his transplant medications. Terry was taken off of the Prograf, as they felt it was what might have been giving him the "shakes." He is now on 150 mg of Cyclosporine (Neoral), twice a day. He is decreasing his Medrol (steroid) every two weeks, and should be weaned from this by 9-25-06...if all goes well. When he had his minor rejection, he was immediately put back up to the full dose of Medrol, and had 3 days of steroid IV's. Terry still takes Bactrim 3 days a week, which is the antibiotic. He takes his anti-depression medication, and this is vital, for any problems with the liver, even anything minor, can cause depression!

That's it for now...that's enough!

Thanks for everyone's kind concern...love and positive energy, cards, phone calls, donations...the world really is a wonderful place! And I should know, becuase I'm a Pollyanna...even when I don't want to be! *s* Lora

Chemotherapy and Fundraisers...Take 2!

2006-08-04T20:25:00.000-04:00

First, CHEMOTHERAPY (want to get that over with first, of course!), but please read below to see where you can help raise funds! Please share this with friends.

Dad begins chemotherapy on Monday the 7th of August. His liver enzymes were not quite perfect, but the oncologist thinks that they should go forward with chemotherapy. I am not quite clear what the duration of the treatments will be, so we'll fill you in on the actual FACTS when I have corroborated with the fam.

Dad continues to have some shaking/trembling though one of his anti-rejection medications was changed (Prograf to ... again, I have to get the correct info!). All in all, considering everything, Dad is doing pretty well! He even sang a few lines of a Barenaked Ladies classic to me on the phone the other night! And, today, he walked three miles, put blocks on Colin's tricycle pedals and did about 42 other things. That must be a good sign...

Please do continue to keep Dad and Mom in your thoughts and prayers and healing energies.

FUNDRAISING:

All of the following events will be fundraisers for the "Friends for Terry" fund. It looks like we will be raising funds directly instead of through a non-profit organization. What this means is tat all monies will go directly to help Dad cover costs while he is unable to work, and that donations cannot be tax-deductible. But we've got a lot of great things in store.

Please note:
1--The YARD SALE will be held on SATURDAY September 9th and SUNDAY September 10th! (Times to be announced.) HOLD THE DATE! The sale will be in Warren, MI.

What we need:

a--More donations of goods to sell at the sale. What do you have? Toni (Dad's sister) is coordinating pick up and/or drop off of goods at her house. Contact her at 586-776-5847 or tfrikken@christianfinancialcu.org

b--People to help work the yard sale! Can you help set up, clean up, tote the extras to Goodwill (or wherever else?)? Help sell? Email me at sfrikken@yahoo.com

c--People to make REALLY GREAT SIGNS! Got artistic talents, or can you color? Email me at sfrikken@yahoo.com

2--EBAY AUCTIONS!
We've got some signed music CDs and some other goodies to auction for funds!

What else do we need?

a--More in-kind donations to auction!! Do you have a business, or know of someone who is willing to donate a service or goods to auction? Email me at sfrikken@yahoo.com

3--AVON CALLING!

A friend of Kate (Terry's daughter)'s has offered to use her status as an Avon saleswoman to help us raise funds. You will have a chance to shop for great deals from Avon while raising funds for Terry! If you have any friends/family/coworkers who may be interested, please contact Kate at kate_frikken@hotmail.com

4--BUT WAIT, THERE'S MORE!

Terry (our bruddah; da son) may have another trick up his sleeve to work a refreshment stand at a big concert. More info TBA. Stay tuned!!

Thank you for all your help~!

In gratitude
Susan, Kate, Terry, Lora -- and the rest of the Friends for Terry

Chemotherapy and fundraisers! We need your help.

2006-08-04T20:07:00.000-04:00

First, CHEMOTHERAPY (want to get that over with first, of course!), but please read below to see where you can help raise funds! Please share this with friends.

Dad begins chemotherapy on Monday the 7th of August. His liver enzymes were not quite perfect, but the oncologist thinks that they should go forward with chemotherapy. I am not quite clear what the duration of the treatments will be, so we'll fill you in on the actual FACTS when I have corroborated with the fam.

Dad continues to have some shaking/trembling though one of his anti-rejection medications was changed (Prograf to ... again, I have to get the correct info!).

All in all, considering everything, Dad is doing pretty well! He even sang a few lines of a Barenaked Ladies classic to me on the phone the other night! That must be a good sign...

Please do continue to keep Dad and Mom in your thoughts and prayers and healing energies.

FUNDRAISING:

All of the following events will be fundraisers for the "Friends for Terry" fund. It looks like we will be raising funds directly instead of through a non-profit organization. What this means is that all monies will go directly to help Dad cover costs while he is unable to work, and that donations cannot be tax-deductible.

But we've got a lot of great things in store. Please note:

1--The Yard Sale will be held on SATURDAY September 9th and SUNDAY September 10th!
(Times to be announced.) HOLD THE DATE! The sale will be in Warren, MI.

What we need:
a--More donations of goods to sell at the sale. What do you have? Toni (Dad's sister) is coordinating pick up and/or drop off of goods at her house. Contact her at 586-776-5847 or tfrikken@christianfinancialcu.org
b--People to help work the yard sale! Can you help set up, clean up, tote the extras to Goodwill (or wherever else?)? Help sell? Email me at sfrikken@yahoo.com
c--People to make REALLY GREAT SIGNS! Got artistic talents, or can you color? Email me at sfrikken@yahoo.com

No problems with biopsy

2006-07-27T15:35:00.000-04:00

Dad's ultrasound and liver biopsy showed no problems. So, the doctors are simply going to keep monitoring his bloodwork. His hepatologist said it could just be the phase where his new liver and he are becoming adjusted to one another.

In Kate news; today's spinal tap showed no increased pressure, ruling out the pseudotumor cerebri diagnosis. Back to the drawing board.

Liver Enzymes High: Biopsy and Ultrasound - Spinal Tap (Kate)

2006-07-25T18:20:00.000-04:00

A little editor's note about the last blog post: Dad isn't time-traveling; his chemotherapy is scheduled for AUGUST 7th!. If he still has it...

He heard today that yesterday's routine bloodwork shows that his liver enzymes are "still out of line"; tomorrow, he will have to be at the hospital (Henry Ford in Detroit) by 8am for a liver ultrasound and biopsy. He's been feeling very exhausted, and having some bad tremors. They can be side effects of medication, or symptoms of other issues.

Kate's spinal tap is scheduled for Thursday morning.

Keep your fingers crossed. Please keep them all in your thoughts and prayers as you have. Give a ring and stop by (as some of you have!).

Dad update; chemo on the books (with Kate in there, too!)

2006-07-24T19:22:00.000-04:00

Took Dad to his bloodwork visit today at the hospital; looking good...
Monday (31st of July), he'll have his next clinical check-up, and then the following Monday (7 July) he will undergo chemotherapy, as we mentioned before.

Keep him in your thoughts! He's wearing his sunscreen (i hear), and is staying very busy putzing as much as he can before he poops out.

Stay tuned for more fundraising information. Thanks to those of you who have responded!

Pseudotumor cerebri:
This is what the neurologist said that Katie likely has, and that they will try to confirm with a spinal tap tomorrow or Wednesday, latest.

Basically, this is extra spinal fluid, exerting pressure on her optic nerves. It appears to be/they said it was very treatable. Looks kind of rare, with varying results and recurrence.
Here are some of the sites i found regarding this: http://www.pseudotumorcerebri.com/
A good general site for the layperson; it is also a support network for people with this issue. http://www.nlm.nih.gov/medlineplus/ency/article/000351.htm good information on the issue, plus things that may be associated with/causative http://www.ninds.nih.gov/disorders/pseudotumorcerebri/pseudotumorcerebri.htm

Update on Dad and Kate

2006-07-20T18:09:00.000-04:00

An update on Dad: He is feeling much better today. I bought him some sunscreen. He has to wear it all the time, as his anti-rejection meds make it so he is more susceptible to sun and also the cancers it can cause. Ask him if he's wearing it when you see him! (He'll LOVE it, REALLY..ha.)

While I am able to be here in Roseville for a few more days, I'll be making some face-to-face contacts with businesses and individuals who may be able to help do some fundraising!

Do you know anyone who would want to donate money, products or services to help us raise funds for the National Foundation for Transplants? (See earlier post on the blog: Friends for Terry )

If you or anyone else would like to be involved, we'll be:

1--Trying to plan a golf tournament (in Metro Detroit area...if anyone loves sports, or knows someone with tournament experience please let me know!)
2--Having some auctions
3--Soliciting general donations.

If a business wants to donate, we'll definitely promote them on this blog and at any event they choose to sponsor or donate toward.

Katie:
Kate has come home from the hospital. All tests that they ran (CAT scans, MRIs, EKG, EEGs, Doppler tests of blood vessels/heart) have come back negative. Nothing to show. No tumor, no aneurism, no other scary things. Something did, indeed, happen with her brain. They found a "spot" on it; the doctor who discharged her says it could have been there for a while (!); they did tests for Multiple Sclerosis, and those have not come back yet. She is to follow up closely with her doctor. Apparently they think that a viral infection could have caused a minor stroke! So, we'll be researching some more; one of her friends said he did find that this is possible, doing some web research.

She feels much, much better; however, with unanswered questions, we are all very nervous! We'll be keeping a very close eye on her.

Thanks for all of your attention and support.

Short update...Fundraising, Dad and his daughter

2006-07-18T18:08:00.000-04:00

Quick update. Dad seems to be doing somewhat better after three days of super-steroid treatments, but feeling kind of crappy. Keep him in your thoughts, and give him a call when you can.

More news: Today we found out Kate -- Terry's daughter, Kate, who has been taking care of the bulk of his bills and doing a lot of things for him (along with Terry, his son)-- has had a minor stroke. She is currently in the hospital, and they will be running many tests on her until they know exactly what has happened.

Needless to say, since Dad cannot go to the hospital (due to his suppressed immune system), he is really having a harder time with this. Mom is also even more extended than usual, so if you can, please give her your love and attention. The rest of us (his mother, sister, me! and more...) need your love, too.

On another important front: As you may remember, the non-profit set up as Friends for Terry is not really a non-profit fund, yet. If you made a contribution, it is not tax-deductible. However! We have found an organization that we will be working with that IS a non-profit, so that all donations will be tax-deductible; also, they will help us fundraise and -- best yet -- they disperse funds that Dad will need.

Stay tuned, but here is a link to the organization: National Foundation for Transplants. Many of the links were not working last i was there, but try it out. Look at "Find a Patient" to see what we'll be listed under.

When we have Dad's profile up and running, we'll let you know.

If anyone would like to be part of the Volunteer Fundraising Committee for this, please email me! sfrikken@yahoo.com

Take care, and thanks for being part of this!

Medical Updates

2006-07-13T14:34:00.000-04:00

On Monday (7-10-06), Terry found out that his liver enzymes were up. (Terry calls them "enzynes"...another "Terry-ism"...hee hee.) Not into the dangerous area, but "up," meaning not necessarily desirable. Also, his oncologist called to say that he would not begin chemotherapy until the middle of August. We were under the impression that it was beneficial to begin chemo right away, due to finding eight more masses (in addition to the three we knew about before transplant) in his "old" liver, which was examined after the transplant.

Today, Terry had his bloodwork done, and then had a visit with one of the hepatologists. We told him of our concerns about the chemotherapy delay, especially since the liver enzymes were elevated. He agreed, saying the oncologist is usually not anxious to proceed with chemotherapy until the patient is as strong as possible. Since Terry is miles ahead in recovery, the other doctors feel he can begin sooner. They will notify the oncologist of this. We should find out in a day or two when the chemo will begin.

Also, the hepatologist told us that "all of his readings" were elevated, but we should not be alarmed. I asked if that indicated rejection, as we were told this is extremely common while patients recover. They lose or gain weight, become more active, medications change, etc., so rejection can occur. The doctor said, "Yes," this usually indicates some rejection and not to worry. HOWEVER, they will do an ultrasound tomorrow morning at 8:30 a.m. to see...if they can see...what is going on, if anything. Terry will then wait around to see if they want to do a biopsy, which is worrisome, but we were told this is not uncommon as they always want to make certain everything looks okay.

They decided not to decrease his Medrol (a steriod), so he is to stay at 8 mg. of this until told otherwise. He doesn't have to take the oral "antibiotic" anymore as soon as it runs out, which should be next week. So, he will be down to Medrol (steroid), Prograf (anti-rejection), Celexa (for depression), and Bactrim (eliminates bacteria...ex: helping prevent urinary tract infections, as the anti-rejection drugs suppress the immune system). He has pain medication, if needed, which he doesn't take often, and a mild sleeping pill, as needed.

That's about it for now. More when we find out what tomorrow brings. OH! Except he can cut the grass, wearing a mask. He can golf "a few rounds" of golf, with mask, I assume. (Not fond of all those golf-course-chemicals used to green everything up.) Terry then asked, "How about 9 holes of golf?" Smiling and hoping to sub on the golf league he can't play on this year.

The doctor answered: You won't hurt the liver, but you could strain muscles, incision, and so on, which are not in shape, and then end up in some real pain and difficulty. "AND, I would rather have you play 4 holes now, so that you can still be golfing 18 holes...10 years from now!" That's why he's the doctor!

Amen...Lora

This Is A Nice Way To Check In...

2006-07-09T13:14:00.000-04:00

...with Terry's transplant and upcoming chemotherapy. Susan (the oldest), is placing most of the updates at this site, so you will enjoy what you read, as well as be informed about Terry's progress. Susan's partner, Deb, has provided much backup, research and technical help, with links, etc. A DEB SECRET: Deb ACTUALLY reads all of the manuals that come with products! We ask Deb a lot of questions! *s*

NOTE: Originally, we thought our fund had been set up as a non-profit fund. However, as Kate (middle child), who is handling any funds raised, found out from the IRS, you can't have a non-profit fund for just ONE person. Non-profit would have to be for the benfit of a group of people. So we apologize for any misconceptions concerning this fund...which IS a taxable fund! However, Kate and the rest of the kids (kids to me...adults to the world!), have hopes of turning this fund into a true non-profit source, once their Dad no longer has need of it!

Terry, Jr. (the youngest) and his students, friends, co-workers, have already done so much to help us out. His varsity softball team/students, through a surprise T-Shirt sale fundraiser and their efforts of making his Dad's plight known, PLUS, the Downtown HoeDown fundraising weekend (all explained in previous entries), have raised nearly all of the funds accumulated so far!

You see, each of our children have dedicated themselves to taking over the added burden caused by their Dad's transplant! It frees me up to do the chores Terry is not allowed to do. For example, avoiding bacteria and infection is PRIMARY! No gardening, touching dirt, no picking up dog POOP (*sigh*), no cleaning the bird cage, no fooling around in the garage, which is rather dank and dusty, etc. I still work full time (as do they!), so our children have given us an extraordinary gift...of time and task...and love!

Susan, as you can see by the website, has concentrated much time and effort on her Dad, as well as working with Deb on a fundraiser, which I am sure they will advertise when they are ready. Susan lives in Wisconsin, so being distant can make it difficult for her.

Kate has taken on the Blue Cross system. She fields all of our paperwork for reimbursing monies we have spent on all types of co-payments, etc., and she has taken care of her Dad's extensive prescription ordering...which is so major it has taken on a life of its own! She is also working on the cookbook fundraiser!! More to come on that, also. Not to forget, providing Grandpa with Colin, who gives us both hours of entertainment and love!

Terry, Jr. has done the two fundraisers mentioned earlier, and will undoubtedly help Terry, Sr.'s friends organize a golf outing fundraiser. And he has told us we can "work" at one of the Lion's games this year, working a concession as we did for the HoeDown. PLUS, he cuts the grass! (Thank you...thank you!)

There are so many more things to mention! Like Terry's Mom, Lois, checking in on her son, taking him to the hospital, sometimes twice a week so I don't have to miss work (I don't get paid if I'm not there), and running errands for and with him. All of the phone calls and cards Terry has received, and is receiving, are the best medicine of all! It's difficult to thank everyone when you are on a treadmill, but we all...want you all...to know how much your efforts means to our family.

So...Please know that we are beyond grateful for everyone's attentions and intentions.

Thanks...With Love...Lora

Independence day for Dad! Bolt-shopping...

2006-07-06T15:35:00.000-04:00

This is from Toni, Dad's sister:

"Your Dad came over to our house on the 4th for a party !!! We had alot of people there, a karaoke machine and stereo system going... alot of fun and laughter and all of Don and My friends mostly got to meet him and let him know he was in their prayers. they all commented on how well he looked, and we super glad he was there for a short time. They are all good people who constantly ask about how he is doing !!! I know I have pictures, so I will try and get Kate to get them to you..."

So...if you don't see photos of the 4th of July soon, remind me to harrass Aunt Tuna...

:)

I talked to Dad yesterday; when i returned his call, he was out at the hardware store, shopping for a bolt for the front door.

So don't forget:

1--Stop in and CHECK ON HIM TO MAKE SURE HE'S ONLY PUTZING and not over-exerting himself.

2--CALL HIM.

3--OFFER TO WALK WITH HIM. He loves walking the mall, around the block. Around Home Depot...

Thanks!

Mini update: Driving!

2006-07-04T21:14:00.000-04:00

Watch out on the roads: Dad is driving! The doc said he could drive as long as he could turn his head without pain. So he apparently drove himself to his own bloodwork appointment the other day.

They have adjusted one of Dad's anti-rejection medications a few more times. Mostly down, but slightly up again.

I have to get some more stories to share, here! And photos...!

Send them if you got 'em!
sfrikken@yahoo.com

Chemotherapy (a.k.a.: not happy, it's crappy!)

2006-06-29T13:12:00.000-04:00

Talking to Dad yesterday, he spelled out the two chemotherapy drugs that the oncologist says they will be giving him. The therapy will be anywhere from two to four-ish weeks, depending on how he is recovering. Meaning: How well his immune system is rebounding.

Chemotherapy will again challenge his immune system. He is not happy about feeling crappy again.

Side effects from these meds are: nauseau, vomiting, and fatigue.

The meds to be injected are:

Eloxatin
&
Gemzar

This article I found online explains that these, plus another that Dad won't be getting that is too hard on heart and kidneys, are often used to treat hepatocellular carcinoma (his liver cancer).

Have you called him yet?

Oh, AND...he said he walked a mile yesterday! !

Oncology visits start tomorrow

2006-06-27T18:03:00.000-04:00

Tomorrow the visit to the oncologist starts. That is the third visit per week. From what we understand, they will be discussing the start of chemotherapy.

They have reduced one of dad's anti-rejection meds again, and mid-july he'll be off one of his anti-bacterial drugs.

He's got cabin fever. Call him: 586-774-2867. Better yet, call, and schedule a time to drop by!

Record breaking recovery...

2006-06-23T11:55:00.000-04:00

Dad, protecting himself with a mask from four of Terry (his son)'s star softball team, who visited and brought him an amazing photo collage.

While at his 2nd of twice-weekly follow up visits with the hepatologist at Henry Ford, dad found out from his (nurse case manager?) that he was the fastest discharge from liver transplant at the hospital. Tuesday surgery, Sunday discharge. Though he had some trouble, you know that he was REALLY happy to hear that. He wants it done, like NOW. This is the same man who, walking to all the monuments on the Washington DC Capital Mall, tries to see them all in one day. Surprised!?

He's also been WALKING AROUND THE BLOCK; he gets mad that he gets tired. But he's doing it.

The visits are pretty much to track his bloodwork and the liver transplant. The oncology tracking will also be part of his follow up care. They track bloodwork twice per week. The medications are many, as are the side effects, interactions, and guidelines for use. Lots of heady stuff. We looked them all up on the NIH's Medline site. Check this out for an example of just one medication and it's issues: http://www.nlm.nih.gov/medlineplus/druginfo/uspdi/202914.html

The surgeon on the transplant team who did the surgery, as well as the last 2 of his 3 tumor removals, wants dad to have CHEMOTHERAPY after he heals. This is because if there is any cancer at all in his system, they can get it. All signs point to no cancer. There was no cancer in:

the lymph nodes right near his liver, or
in the blood vessels of the "old" liver.

This is great because they'd likely show up here if there was metastases. There was new cancer growing in the old liver, though, so this is definitely a good idea. The anti rejections drugs, one in particular, not only inhibit the action of the immune system (needed to fight diseases and infections), but one actually encourages cancer to grow if any is present (also need to be careful in sunlight as skin cancer is much higher risk).

SO MUCH GOING WELL! Just lots to be aware of.

HE NEEDS YOUR DISTRACTIONS. TV is not enough (or really edifying enough), and though he's got audio books, book-books, and even a plug-and-play Ms. Packman game, he really needs to share his thoughts, talk and be busy not trying to lift things or get into trouble!

THANK YOU!

Fundraisers...Get involved!

2006-06-20T14:53:00.000-04:00

Many of you know that Friends for Terry was created by Kate (daughter of 1974 vintage) to raise funds for Dad so that he can pay for his medical expenses, both direct (copays, etc.) and indirect (nutritional needs, medical supplies not covered, other therapies).

This is to share with you a little bit about what fundraisers have happened, what is happening, and what is to come!

1--Terry, Jr. (son, circa 1976) is a teacher at Milford (MI) High School. He also runs the women's softball program and coaches the varsity team. Dad has been very involved-an eternal booster--of the games. (He played ball, and encouraged all of our love of the games...) On their own, the varsity team involved their high school and collected over $4,000 for the fund. They presented the check with specially made T-shirts for family, friends and supporters.

2--At the annual Downtown Hoedown at Detroit's Hart Plaza in May http://www.wycdhoedown.com/ , more volunteers served refreshments late into the nights to raise funds at the booths. Terry, Jr. arranged this.

3--Currently, there is a link on this website to donate via Amazon.com's Honor System. These donations can be made anonymously or information may be sent to the family regarding your donation.
Use this link: http://s1.amazon.com/paypage/P1LW6GQB0OBXX3/103-1344856-9070217

4-- Susan (daughter of the '60s) and Deb (her partner in life, crime, etc.) have a few tricks up their sleeves (though as it is summer, they may have to put some in their pockets).

They are approaching musicians/artists to ask for personalized CDs/other memorabilia to be auctioned.

The first artist to assist is Rose Polenzani, a wonderful lyricist and musician. http://www.rosepolenzani.com/

Some may know her best for her recent stint as a member of Voices on the Verge. She has also donated her CD, as well as autographed it.

5--There's more! (Actually and in planning...):

Yardsales (Warren, MI -- July 8 &9)
Auctions
Golf outings
Bowling events &
Spaghetti dinners

Have an idea? Like to help? Got photos? Contact us, and we'd love to hear your ideas, use your gifts as a volunteer, receive your yard sale goods, take your bids, and more!

Remember, your donations are tax deductible!

Daddy's first day home: Happy Father's Day. Meds. Other patients.

2006-06-19T13:33:00.000-04:00

Dad got home last night to a housefull of dogs, children, a grandchild, wife, mother, sister and her fiance. Barbecue was going, and dad got to sit in his chair.

It was an uncomfortable time, trying to get into a position that wasn't painful. In the hospital, he didn't have much pain, but he was uncomfortable in his whole upper back and abdomen. As he had to have his diaphragm cut away from the liver adhesed to it (the old one), we thought maybe that might be part of the problem.

Today, the 19th, we went back to the hospital's Hepatology clinic for the first follow up. His doctor says all things look good so far. Later today, he'll hear about the bloodwork they did today (checking the antirejection drugs and other levels) and the X-ray they did of his abdomen (to make sure there's nothing blocking his G-I tract). Hopefully it is just slow moving.

At the hospital, we met up with many other patients there for their follow up visits for transplant. Many, if not most of whom we met (and their families) were also liver transplant patients. One woman had had two transplants, and was still having some difficulties. Her first transplant was rejected and she had a second transplant a year later. Another man was there with his wife/partner. They live in Grand Rapids, MI, but this hospital was the closest they could get. (That's about 4-5 hours away.) They had to come in twice a week for bloodwork, and their insurance didn't cover housing needed when they stayed nearby.

The medications he is on are many; several antirejection medications which reduce the ability of the immune system to reject this new organ. The downside of this is that his immune system is reduced. He wears a mask when around sick people (who stay away, ideally), children, pets and out in public. Also, he isn't allowed to work in soil, with animal clean up; pets have their feet wiped well everytime they go out/come in. This makes an anti-yeast (thrush, happens in the mouth) medication necessary. Also, pain medication, fiber medication to help with regularity. Other medications total 10. Some are taken "as needed", but most are necessary. The anitrejection medications are for life. The schedule of medications is quite complicated, as you can imagine! He'll be using one of these: http://tinyurl.com/rq5w7

Check out the linked websites for more information!

History

2006-06-16T08:06:00.000-04:00

Brief history of the situation...

Dad was just recovering from knee surgery, and Kate (his daughter) was pregnant with Colin.

That was December of 2004. He had been feeling some pressure, trouble breathing and upset stomach for some time. Hard to figure out what was wrong because there were other chronic things --like ulcers in the past--that confused things.

Except for the big bump under his ribcage.

After his knee surgery recovery, Dad went to get the bump checked. Turned out to be one liver cancer tumor. They said it must have been growing for a good year. This is primary liver cancer. Usually, this kind of cancer only occurs in people with hepatitis or cirrhosis (badly damaged livers) or people in countries without much food hygiene. Dad is none of those. Usually, people with liver cancer have it because it is a metastatic site of another cancer; in other words, they have had cancer somewhere else first (breast is common) and it spreads to the liver.

That was removed right away. The recovery was difficult, being an abdominal surgery, and dad with his knee newly healed, and being an antsy, hop-to-it kind of guy.

He was monitored closely...so far so good!

However, just under a year later, they discovered another tumor. He was referred to Henry Ford Hospital, this time, as the oncology surgeon at Karmanos (both in Detroit, MI) said he would be unable to remove this new tumor, as it was even closer to one of the major blood vessels of the liver. Surgery, again in November of 2005. They said all looked good, and they got it all this time. Surgery was actually done by a transplant surgeon.

By early 2006, there were more tumors. Surgery again in February of 2006. This last time, they burned them, instead of cutting the liver. More cutting means more scar tissue. Though the liver regenerates, it needs time and takes energy. Also, as the liver is the body's cleaner, his body has been without a full cleaner! So, burned out the tumors, but they did return, more quickly.

As it was not helping to keep performing surgery, and always a risk, his doctors put him on the liver transplant list in Michigan.

He was to have a therapy called Therasphere, which is localized radiation "beads" which would shrink the tumors while he was waiting. Just as he was about to have the procedure, one of the transplant team nixed it, saying he'd have to wait 30 days after that to receive a liver, and if one came up during that time, he could not take it. So, he waited.

He was becoming more physically uncomfortable. He and the family were just about to head back to the team of physicians (oncologists - hepatologists - transplant docs) to say "What is the long term plan? What are we supposed to do while we are waiting and what happens if we don't get one soon and I'm really uncomfortable...!"

And the liver came.

The call came early in the morning of Tuesday 13th of June.

Recovery, Room #

2006-06-16T07:55:00.000-04:00

It is Friday 16 June in the morning. As of last night, Dad was doing really well. He even called us to say he was feeling better than in the morning.

There had been some trouble with his IV that morning (one of the two had been removed, but this was apparently saline) ; his hand was very swollen (and still was by the time of his phone call). The line had not been put in correctly.

By the evening, they still had trouble putting one in, but they got one in. His three remaining surgery drains were removed. His 100 staples in his incision (luckily, they didn't have to cut vertically--up/down--as that is harder to heal) look great. Far as that goes, anyway!

He's now in Room # F331 at Henry Ford Hospital.

He's eating liquid meals on his own, ready to get up and get out of there.

The road to recovery will be good, I think. Your help is needed!

Day #2 after transplant

2006-06-15T11:39:00.000-04:00

Day # 2 after transplant, and it looks like Dad is going to be moving to the main floor (non-ICU)! Yesterday, already off of his respirator, he's moving around his bed on his own (wincingly, albeit), and drains are out, stats are good! This is definitely a quick post, but just so you know!

He is currently at Henry Ford Hospital in Detroit, MI. When he moves to his room, he'll be able to use his cell phone. The # is 586-524-9797.

Will give more information, soon, on the journey to this point, and afterward!

Many thanks, and love from us all.

PS--If you would like to receive information via email, please email Susan Frikken at sfrikken@yahoo.com. I will add you to a lprivate email list that will update you when we post more information.

Official Mission Statement

2006-06-15T11:18:00.000-04:00

Welcome to the official weblog for Friends for Terry. Here, you will be able to find out more information about Terry Frikken, his family and their journey through this adventure in living with primary liver cancer, liver transplant and recovery.

Kate Frikken (his daughter), with the help of Toni Frikken (his sister), created a non-profit fund called "Friends for Terry". Thus, the name of this blog!

"Friends for Terry" was created to find funds to cover the extensive costs associated with recurring liver cancer and liver transplants . These expenses include costs not covered by health insurance such as nutrition consultations, mental health support and various copayments. Expenses also include loss of income post-surgically. Our Dad, Husband, Grandpa, Son and Brother, Terry Frikken is the inspiration for this fund , but your contributions will continue to fill the gap in resources for those facing liver transplant. Friends for Terry is a non-profit, fund and your donations are tax-deductible.

Thank you for being an ongoing part of this journey. It gets harder the longer it goes on, so we appreciate your ongoing love and support!